ADAPT of Texas files HHS/Office of Civil Rights Complaint about the death of Michael Hickson

ADAPT of Texas, a not for profit statewide grassroots disability rights organization filed a complaint, Friday July 24th to Roger Severino, Director of the Department of Health and Human Services/Office of Civil Rights requesting that they:

  1. Investigate St. David South Austin Medical Center’s in regard to the death of Michael Hickson;
  2. Investigate the guardianship process that took decision making about Michael’s care from his spouse;
  3. Investigate the State of Texas for not having any health rationing guidelines and if the Texas 1999 Advanced Directive Act Futile Care section violated Michael Hickson’s civil rights;
  4. Investigate the St David South Austin Medical Center’s committee process that resulted in the doctor’s ability to withdraw supports from Michael Hickson.

“We are filing this complaint because we think Michael’s civil rights were violated” said Nicky Boyt ADAPT of Texas activist. “I do not want what happened to Michael, a person with a disability, to happen to me or other people with disabilities – We are DISABLED NOT DISPOSABLE!”

[The pandemic has gotten so bad in the Valley they have run out of hospital beds, and there are waiting lists for cremations, according to MSNBC. It’s bad all over this state. Wear your mask, 6 feet away, wash your hands!]

COMPLAINT:

Roger Severino, Director Office of Civil Rights

Centralized Case Management Operations

US Department of Health and Human Services

200 Independence Ave S.W.

Room 509 F

HHH Building

Washington, DC 20201

Email: OCRComplaint@HHS.gov

July 24, 2020

Dear Mr. Severino,

ADAPT of Texas is a not-for-profit, statewide, grassroots disability rights organization representing people with disabilities of all ages in Texas.   ADAPT of Texas advocates for the rights of people with disabilities to receive services and supports to live and thrive in the community, and control their own lives.

In your March 28th issuance of Bulletin on Civil Rights Laws and HIPAA Flexibilities that Apply During the COVID-19 Emergency, your second paragraph states:

          “OCR is particularly focused on ensuring that covered entities do not unlawfully discriminate    against people with disabilities when making decisions about their treatment during the COVID-19 health care emergency.”

In light of this, ADAPT of Texas requests an investigation of St David’s South Austin Medical Center’s (contact information listed below) conduct relating to Mr. Michael Hickson, a person with multiple physical and cognitive disabilities, who died at the hospital on June 11, 2020, as the hospital refused to provide him treatment for his COVID 19, because of his disabilities. One of the doctors, in response to Mrs. Hickson asking if the reason they would not treat him was because of his lack of quality of life due to his disabilities, responded yes. 

We request you look at the process that resulted in Travis County Court taking guardianship away from his wife and the rest of his family.

We request you look at the process St David’s utilized in treating Michael Hickson to see if it complied with the Americans with Disabilities Act, and/or Section 504 of the Rehabilitation Act of 1973 or any other relevant civil rights legislation or HHS/OCR guidance. 

We request you investigate the State of Texas’ lack of rationing guidelines and whether this contributes to discrimination against people with disabilities in Texas.  We also request you look at the Futile Care section of the Texas Advanced Directive Act of 1999 to see if it violates the Americans with Disabilities Act, and/or Section 504 of the Rehabilitation Act of 1973 or any other relevant federal and/or state civil rights legislation.

In addition, we also request you look at the process to see if the South Austin Medical Center’s committee, that concurred that supports could be withdrawn from Michael Hickson, had any input from an objective person/organization, knowledgeable about living with a disability, outside of the hospital personnel.  

Yours sincerely,

 

Bob Kafka and the other members of

ADAPT of Texas

1100 South IH 35 Service Road

Austin, TX 78704

512-442-0252

Bob.adapt@sbcglobal.net

 

 

 

MORE ADA!

From Bob: As we celebrate the 30th anniversary of the ADA on July 26th it is good to learn its history. Click here to read an excellent 1992 article by DREDF, Disability Rights Education and Defense Fund on that history.

Also on Saturday July 18th at 4pm eastern tune into KSFR 101.1 Santa Fe, Barrier Free

Lex and Bush, both in wheelchairs, face one another against black background.

Lex Frieden and President George Bush (Senior) years after passage of the ADA. Bush was the President who signed ADA into law.  Frieden headed up the Federal Committee charged with developing the law.

Futures show, hosted by Bob Kafka, you can listen to Lex Frieden give his front row account of the passage of the ADA.  This will also be a podcast on KSFR’s website [and many other terrific interviews are available there too as podcasts!]  Click here

ADA TODAY        ADA TOMORROW       ADA FOREVER

 

 

 

 

 

 

FREE COVID 19 Neighborhood Testing Available!

Austin Public Health wants you to know:

⚠️  Are you experiencing COVID-19 symptoms?
⚠️  Have you been in close contact with someone who tested positive for COVID-19?
⚠️  Are you an older adult or a someone of any age with underlying medical conditions, like an immune-compromised state, obesity, or other chronic disease such as serious health condition?
 
✅  Come by these FREE neighborhood testing locations in areas with highest need!

Southeast Branch – Austin Public Library - 5803 Nuckols Crossing Rd

Given District Park – 3811 E 12th St, Austin, TX 78721

Little Walnut Creek Branch – Austin Public Library – 835 W Rundberg Ln, Austin, TX 78758

Testing hours will be: 
Mondays @ 9am – 1pm
Wednesdays @ 3 – 7pm
Fridays @ 9am – 1pm  
Everyone should enroll online ahead of time for the safety of all at the testing site, but no one will be turned away if they show up needing testing. All personal information is protected, and immigration status is not asked.
 
👉 Sign up online for an appointment: COVID19.AustinTexas.gov.
👉 Need assistance signing up online? Call the Austin Public Health medical hotline: 512-972-5560
(Hotline hours: Mon.- Fri. 8am-6pm and Sat. 9am-1pm)
——————-
 
⚠️  ¿Tiene síntomas de COVID-19?
⚠️  ¿Ha estado en contacto cercano con alguien que dio positivo a una prueba de COVID-19?
⚠️  ¿Es usted un adulto mayor o alguien de cualquier edad con condiciones médicas subyacentes, como un sistema inmunológico comprometido, obesidad u otra enfermedad crónica con condiciones de salud graves?
 
✅  Visite uno de los sitos de pruebas GRATIS que han sido puestos en locaciones de alta necesidad:

Southeast Branch – Austin Public Library - 5803 Nuckols Crossing Rd

Given District Park – 3811 E 12th St, Austin, TX 78721

Little Walnut Creek Branch – Austin Public Library – 835 W Rundberg Ln, Austin, TX 78758

Horario de pruebas será:
Lunes 9am – 1pm
Miércoles 3 – 7pm
Viernes 9am – 1pm  
Todos deben inscribirse en línea con anticipación para la seguridad de todos en el sitio de pruebas, pero nadie será rechazado si aparecen con necesidad de hacerse una prueba. Su información personal será protegida. No se le preguntará su estatus migratorio.
 
👉  Inscríbase en línea para una cita: COVID19.AustinTexas.gov.
👉 ¿Necesita asistencia para inscribirse por internet? Llame a la línea de enfermería de Salud Pública de Austin al 512-972-5560. (Horario de la línea directa: Lunes a viernes de 8am a 6pm y sábados de 9am a 1pm)
Take a Self-Assessment / Llene la Auto-Evaluación

NEXT WEEK IS A BIG VOTING WEEK

Tuesday is of course the run off elections for the primary elections we had so long ago. It’s also the special election here in Travis County to pick who will replace Senator Watson in the Texas Legislature. Who wins in this Texas legislative session will determine who redistricts the districts for Texas in the US Congress. 

But next week is also Disability Voter Registration week. Can you get 5 other people to register?  You can use this Register2vote website to basically register online.  Not sure what that means?  Check it out here.

Here’s a little motivation from our sister organization REV UP.  They have a neat new PSA complete with star power to get you revved up on voting.  

Check out their PSA video here.

They have a new poster for voter registration that you can print or share on social media.  Share the PSA too!

2020 REVUP Issues poster

VOTE AS IF YOUR LIFE DEPENDED ON IT…

Justin Dart said once:

 “Vote as if your life depended on it, because it does!”

Of course he was right, and no more than now.  Tomorrow, July 10th, is the last day of early voting and the regular election day is next Tuesday July 14.  We went today and it was spacious, uncrowded, and very safe!  

Polling sites are in different locations than usual so go to the Travis County Election site to see a personal (to you) sample ballot and early voting and election day polling locations.  

Want to know what the Democrats in the Run off for the Texas United States Senate seat are saying about disability issues?  Go to the REV UP site and you can see their responses to a candidates’ survey on these issues and an interview with State Senator Royce West.  MJ Heger answered the survey but didn’t do the in-person interview. Their answers are very enlightening. Senator Cornyn, the incumbent Republican will be requested to respond again (he has so far failed to answer the three requests sent so far) and if he does, that will go up with the Democratic winner for the fall election Nov 3rd.

If you have any problems at the polls or with your mail in ballot: 

ELECTION PROTECTION HOTLINES

  • ENGLISH 866-OUR-VOTE 866-867-8683
  • SPANISH 888-VE-Y-VOTA 888-839-8682
  • ASIAN LANGUAGES 888-API-VOTE 888-274-8683
  • ARABIC 844-YALLA-US 844-925-5287

Disability Rights Texas (DRTx)Voting Information Hotline – 1-888-796-VOTE (8683)

DISABLED, NOT DISPOSABLE

A line of protesters stand on a sidewalk by a chainlink fence. Some are standing, some in wheelchairs.  They are holding posters

Protesters at the Independence Day protest of the Life Worthy of Life, Disabled Not Disposable, Justice for Michael Hickson vigil.

JUSTICE FOR MICHAEL; BLACK DISABLED LIVES MATTER

On the evening of July 4th, Independence Day, ADAPT of Texas, Not Dead Yet, Democratic Socialist of America, DSA and other activists joined forces on the side of the Rte. 71 (West Ben White Blvd) access road in front of St David’s South Austin Hospital to protest against rationing the lives of people with disabilities.  Wearing masks and keeping the 6 foot social distance protesters stood with signs and called for fair treatment of disabled people who get COVID-19.  

Nicky Boyte and Sophia Donnelly, organizers of the event, called for Justice for Michael Hickson, and a recognition that folks with disabilities have #lives worthy of living. The group was also calling for Charles Laird, CEO of St David’s South Austin, to meet and to amend their triage policies to be more just toward people with disabilities.

A doctor who treated Michael Hickson told his wife Michelle that the decision not to treat Michael was because of his disability. Michelle has a recording of this conversation.  The hospital Chief Medical Officer says this was not the reason. 

Demands: 1) Full and immediate investigation of Michael Hickson's death by state and federal officials including the role of the medical community. 2) Charles Laird, St David's CEO meet with ADAPT of Texas.

Demands for the vigil/protest against St David’s South Hospital where Michael Hickson was deemed unworthy of trying to save because of his disability.

After a couple of hours by the access road, protesters marched to the front of the hospital and sent in their demands. After, they shared their stories and feelings and wrote wishes on special paper that once lit, vaporized (to be environmentally friendly.)

Protesters in a circle watch a young man light candles for the vigil

Vigil protesters made a circle in front of the hospital and lit candles for Michael and people with disabilities with COVID 19.

The group numbered about 50 people and the passion was clear.  Some folks were quite vulnerable to respiratory issues but felt they must add their voices – in person – to the message.  Others were young activists who came to the issue from the Black Lives Matter activism, but clearly understood the disabled lives matter aspect too.

Advocates are thinking about next steps. 

See related post below of earlier protest. Check out the ADAPT of Texas Facebook page for more photos and videos of the vigil. 

Read Mike Ervin’s Shut Down the Death Traps, his take on Our Homes Not Nursing Homes 

WE’RE ASKIN’ FOR MASKIN’ IF YOU LOVE US, GLOVE US! CAMPAIGN

ADAPT of Texas and PACT are working hard to get masks for attendants, and gloves too.  If you need masks for your attendant just call the office and leave a message with the name and address and that you are calling about masks for attendants.  We mail out packets every few weeks.  Thanks for Centene, the City of Austin and their partners for supplies we have found so far. It’s not an infinite amount, so please just call if you need them.  BUT if you need them, call.  

Believe it or not, not all attendant service agencies provide masks for the attendants, or they give them one mask for a week. 

Desert ADAPT and PACT, who got supplies thanks to Amerigroup is also sending out masks.  Here is their set up ready for mailing!

table with masks and gloves neatly laid out on red tablecloth

Supplies for attendants as El Paso PACT gets ready to distribute! Photo by Kika Grajeda

   Believe it or not #2 — the Governor and HHSC refuse to talk with ADAPT or do anything about making sure their essential workers, attendants, have PPE like masks and gloves.  Please add your message to the Governor that we need PPE for our attendants and the folks they assist!  Send a glove or a picture of your bare hands with your message.

Here is a sample (thanks to Nancy Crowther for the sample letter, and cute hands!)

letter to Governor Abbott from Nancy Crowther with her hand drawn on it she wrote LOVE US GLOVE US, one word in each finger.

Send a letter with your handy message to Governor Abbott

Disabled Peoples’ Lives Have Value

Jeff, sitting in manual wheelchair (and in mask) by side of road holds long sign reading "#Life Worthy of Life for People with Disabilities"

Protest today (6/28/20) at St David’s South Austin Medical Center where quadriplegic was refused medical treatment for COVID 19.

3 people in wheelchairs hold signs by entrance to St David's Hospital South Austin. First sign: Disabled not disposable. Other sign: Justice for Michael Hickson 6-6-73 to 6-11-20.

Nicky, Ron, Jeff and Cathy (not in picture) protest for ADAPT of Texas, the death of Michael Hickson.

 

 

 

 

 

 

 

 

 

 

Michael Hickson was a quadriplegic with a brain injury who was refused treatment for COVID 19 that he acquired in a local nursing home.  Mr Hickson died on 6-11-20.  ADAPT of Texas has long been concerned about the devaluation and resulting lack of care for people with disabilities, especially in this pandemic.  As cases rise in Austin and hospitals fill, the threat grows greater.  More just triage plans are available and being used elsewhere, but will Austin in general, and St David’s South Austin Medical Center in particular care enough to do anything about this?   

Our hearts go out to Mr Hickon’s family, who were apparently left out of the decision.  

ADAPT has long battled against Texas’ draconian laws regarding end of life decisions and their disregard for people with disabilities and their families.  People with disabilities and their families know best.

#disabilitylivesmatter

#blackdisabledlivesmatter

#lifeworthyoflife

Take Action on Multiple Issues Affecting Our Community!

           Ron & Emily join other protesters outside TX Governor's mansion calling for PPE for attendantsJulie stands tall for PPE for attendants at protest at TX Governor's mansionPlease forward this information so others can take action too. Lots of different kinds of things you can do here!

Electronic Visit Verification

Tell Senator Cruz and Senator Cornyn to support S. 3740 

S. 3740 is the COVID-19 Recovery for Seniors and People with Disabilities Act

This bill will “delay the implementation of the Electronic Visit Verification requirement until 6 months after the end of the national public health emergency in order to eliminate barriers to care in the home and keep people out of congregate settings.”

We all know that people with disabilities and Seniors are dying in the institutions due to the corona virus.  Tell them to help our people.

Call and/or email:

Senator Cruz   Central Texas  512.916.5834 or   D.C. 202.224.5922

Click this link to email him: https://www.cruz.senate.gov/?p=form&id=16

Senator Cornyn   Austin  512.469.6034 or  D.C.  202.224.2934

Click this link to email him: https://www.cornyn.senate.gov/contact

 

Congress has a House and a Senate Bill addressing rental housing. 

The Emergency Rental Assistance and Rental Market Stabilization Act

S. 3685 and H.R. 6820 would put $100 billion into rental assistance.  The Health and Economic Recovery Omnibus Emergency SolutionAct 

(HEROES Act) H.R. 6800 has been passed by the House. The Senate needs to pass it now to address in-home services and safety. We need things from the Bill like the additional funding for Home and Community Based Services and hazard pay for Attendants. 

Please contact Senator Cornyn and Senator Cruz on this issue.  Their email and office phone numbers are at the bottom of #2.

#ADAPTANDSURVIVE

Congress is making decisions about our lives right now.

Congress must take action to support the lives of our community.  Send a message to Congress and the world why your life is not disposable during COVID-19 and worth saving.

Please do a one minute video and/or photo using the hashtags and messages below. 

Once completed please send your photo and/or video to Josue Rodriguez or Laura Halvorson for photo description and the video for captioning.  Below is their email info.

#DisabledNotDisposable

#LifeWorthyofLife

#ADAPTandSURVIVE

Community Attendants are #EssentialWorkers

Click on this National ADAPT link below if you want to view examples of videos made, like Latoya Maddox’s, ADAPTandSurvive video.

ADAPT DEMANDS Congress support our right to live in the community by funding home and community based services, supporting our Community Workforce, making personal protective equipment available, and ensuring we have affordable, accessible, integrated housing.

ADAPT has sent an Open Letter to Congress demanding action. We must ensure Congress pays attention and responds to our needs!

Post on social media, write an email, organize a car parade around your Congress members Offices! In any way you can, tell Congress: 

  • Unnecessary institutionalization has been illegal since at least 1990.  Now the COVID pandemic has exposed further dangers of congregate living.  
  • Forcing people into institutions is not only a violation of our rights, it is a DANGER to our safety, well-being, and our LIVES. 
  • We need the services and supports that allow us to safely shelter-in-place in the community.
  • Community services must be available to keep people from being institutionalized in congregate settings.
  • Programs, services, and supports must be available to allow people to move back into the community to live in the most integrated setting. 
  • Direct Service and Support Workers are essential to keeping us alive, safe and healthy. They deserve to be recognized and protected by receiving increased wages, overtime pay, hazard pay, and protective gear.
  • The number one barrier to home and community living is lack of affordable, accessible, integrated housing. Housing must be developed.  The shortage of housing that is affordable, accessible and integrated is past the critical stage.  Likewise rental subsidies must be vastly increased. 

PPEs for PCAs (Attendants)  

Below is something we did in Austin. You are welcome to use it as a template to take action in you local area. 

Call and/or Email your City Council members about Personal Protection Equipment (PPE) Mask and Gloves

Contact your City Council Member and let them know you are an individual with a disability and work with a personal attendant and are in need of PPE  

Ask your attendant to call their city council member and ask for PPE also.

Tell them the home care agencies are not giving enough masks and gloves to your attendants and they are having to use the same one multiple times which is not a good way to keep the virus from spreading. 

Below is the list of Austin Council Members with their phone numbers to call. If you click on their name you can also send an email to the council member.  (If you live outside Austin just google your City Council or County Commissioners).

Name Phone
Mayor Stephen Adler 512-978-2100
District 1 Council Member Natasha Harper-Madison 512-978-2101
District 2 Council Member Delia Garza 512-978-2102
District 3 Council Member Sabino “Pio” Renteria 512-978-2103
District 4 Council Member Gregorio “Greg” Casar 512-978-2104
District 5 Council Member Ann Kitchen 512-978-2105
District 6 Council Member Jimmy Flannigan 512-978-2106
District 7 Council Member Leslie Pool 512-978-2107
District 8 Council Member Paige Ellis 512-978-2108
District 9 Council Member Kathie Tovo 512-978-2109
District 10 Council Member Alison Alter 512-978-2110
 

Askin’ For Maskin’ Campaign

Hello Texas ADAPTers,

Below is the “Dear Governor letter” campaign for Personal Protective Equipment (PPE).

Please take time to mail a clean glove, or drawn/traced hand to Gov Abbott. Include a message asking for a commitment for PPE for our Disabled Community and Attendants. Have fun and write your message on the glove.

I have attached the letter with the ADAPT/PACT logo. For those that have a printer you are welcomed to use the logos.

Hope you all are doing well.  Stay healthy. If you have any questions please feel free to call me.

Free Our People!
Community Attendants Equal Independence!
Cathy
512.650.6543

 

***

 

A green star with the letters PACT inside. In a circle around the star are the words community attendants equal independence.

PACT Logo

 

ADAPT Free Our People logo with person in a wheelchair breaking chains over their head

 

Office of the Governor

P.O. Box 12428

Austin, Texas 78711-2428
 
(Include date)
 
Dear Governor Abbott,
Across Texas the number of cases of COVID-19 is growing. Yet, the needs of Personal Attendants and People with Disabilities in the community are being ignored.                                                                                                                                                                Personal Protective Equipment (PPE) are either difficult or impossible to find thus endangering our Community.

Governor Abbott, commit to providing PPE to essential community healthcare workers and the people with disabilities they work with and assist.
 
“We’re asking for masking.  If you love us, glove us!”
 
(Please add your signature here)

*******************************************

Thank you for taking action to assist our community! 

Free Our People!

Community Attendants Equal Independence!

Cathy Cranston

National ADAPT Condemns Police Brutality and Calls for Racial Justice

In the middle of a pandemic, Black, Indigenous, and people of color (BIPOC) are not just being killed at alarming rates by COVID19, but are yet again being senselessly targeted by police, and some have been murdered.

For years, on the first day of each National ADAPT Action we hold legal and new members’ meetings. These meetings always include a reminder of police brutality toward Black, brown and indigenous people, and people from other oppressed communities.

National ADAPT condemns the recent murders of:

Ahmaud Arbery, a 25-year-old, unarmed young man who was out jogging, and murdered by the McMichaels, who were tipped off by an off-duty police officer;

Nicolas Chavez, a 27-year-old father of 3 young children, was fatally shot after Chavez was on his knees reeling from being shot not only by sandbags but also a taser;

Breonna Taylor was a 26-year-old certified EMT and first responder during the pandemic. On May 13 police forcibly entered her apartment and shot her 8 times as she slept.

Malik Williams The Police Department in Federal Way, Washington executed this man while he sat in his car. Not being able to move he was shot 86 times.

Jeremy McDole 28, paraplegic killed by Wilmington, DE police.

Saheed Vassell shot 19 times by NYC police Department. The officers jumped out and started firing without warning.He had a psychiatric disability.

Dreasjon “Sean” Reed, a 21-year-old, gunned down by Indianapolis police while he was live streaming a Facebook video; and

On May 26, George Floyd, who was murdered by suffocation while handcuffed and on the ground when a police officer kneeled with all his weight on Floyd’s neck.

We vehemently condemn and must put an end to all murders of BIPOC by police brutality.

Engaging in protest and non-violent civil disobedience is a right National ADAPT has long exercised under the First Amendment of our nation’s Constitution.
However, to protest without fear of violent reprisal, and even death, is a privilege reserved for our white siblings in the disability rights movement. Our disability rights movement owes a great deal to the Black civil rights movement that laid the groundwork for us under the spray of firehoses, the torrent of fists, and too many bullets.

We live today with a system that compounds the social and psychic damage experienced by the ancestors of Black, brown and Indigenous people, bridging the mob lynchings, and smallpox laden blankets of yesteryear into police “lynchings” of today. It is long past time for this to end!

National ADAPT, our local chapters, and our individual advocates and activists commit to the following:

We will call out as racial terrorism the acts of white people when they threaten, harass, and commit acts of violence against Black people and other people of color in public spaces.

We will not re-play, post, or amplify images, videos or depictions of Black people and other people from marginalized groups experiencing violence, because we recognize the trauma experienced by repeated exposure to these images.

We will continue to actively oppose the institutionalization of all people, and the damage done through institutionalization. Our fight includes opposing mass incarceration, the over-criminalization in the legal system, and the racial presumption of guilt that permeate the Black experience in this country and result in disproportionate numbers of BIPOC living in prisons, jails, psychiatric facilities, nursing facilities, and other institutions.

We will continue our anti-racism and equity work to lift up the experiences of multiply marginalized members of our community, to center them, their stories, and their solutions to the systemic racism and ableism we are committed to bringing to an end.
We hold ourselves and our disability rights siblings to the anti-racism work that is intrinsically linked to the fight for disability rights.

As an organization made up of committed social justice warriors, ADAPT cleaves to the teachings of Dr. Martin Luther King, Jr., as one of the leaders of the movement we build upon in our work, “Injustice anywhere is a threat to justice everywhere. We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.”

We, the members of National ADAPT, demand the senseless murders end. We can have no justice, no peace, no freedom and no rest until we have justice for our Black and Brown and Indigenous family.

#BlackLivesMatter

#SayTheirNames

#LivesWorthyOfLife