ADAPT Hosts Rally Demanding the Senate to Prioritize the Needs of the Disability Community

Who:  National ADAPT What:  Rally  When: Wednesday, May 11th starting at 10AM.  Where:  U.S. Capitol Grounds area 12 (Between Constitution Ave N.W., Pennsylvania Ave N.W., 1st St. N.W. and 3rd St N.W.) For More information:  Nina Bakoyiannis      ninabakoyiannis@gmail.com
Misty Dion                  misty.m.dion@gmail.com      www.nationaladapt.org

Washington, D.C.-  National ADAPT, the nation’s largest grassroots disability rights activist organization, closes out their action week by hosting a rally on U.S. Capitol grounds to demand the Senate immediately prioritize the needs of the disability community. While the House and Senate are busy supporting the legalization of medical-assisted suicide for disabled individuals, activists across the country remind the government that they are DISABLED not DISPOSABLE, and that they have lives worthy of living. National ADAPT is fighting for the right for disabled individuals to live in the community with the services and supports needed, NOT be forced into an untimely death because of an underfunded long-term system that leaves disabled individuals with few options. National ADAPT demands the Senate: 

  1. * The expansion of Home and Community Based Services to increase access, quality, and uniformity nationwide so people with disabilities can live independently in the community.
  2. * Increased wages for community attendant workers to ensure a livable wage. 
  3. * An expansion of affordable, accessible, integrated housing development and rent subsidy programs targeting low- and moderate-income people with disabilities, especially people who receive HCBS services.
  4. * Stop the unnecessary and dangerous overuse of guardianships and assure the least restrictive mandates of Olmstead are enforced. Guardians must allow access to federal community services under ADA.
  5. * Support H. Con. Res. 68, a resolution that highlights the terrible consequences of legalizing assisted suicide.  

ADAPT organizer Nina Bakoyiannis from the Downstate New York chapter says, “It is the greatest act of violence to attempt to legalize our deaths while restricting access to basic services that keep us alive. All we have been asking for is the right to personal attendant services, an accessible place to live, and a livable wage for our workers. The Senate has made their prioritizes abundantly clear. It’s time for them to do the right thing and invest in our lives and our services, not our deaths.” 

National ADAPT Demands U.S. Department of Housing and Urban Development (HUD) prioritize accessible housing for people with disabilities

Who:  National ADAPT

What:  Demonstration to demand HUD prioritize the needs of the disability community

When: Tuesday, May 10th starting at 9:30AM

Where:  HUD, 451 7th Street, S.W., Washington D.C., 20410

For More information: 

Nina Bakoyiannis   inabakoyiannis@gmail.com

Rhoda Gibson              rhodagibson2@gmail.comwww.nationaladapt.org

Washington, D.C.-  National ADAPT, the nation’s largest grassroots disability rights activist organization, is advocating for affordable, accessible, and integrated housing. This is integral to ending the institutional bias and ensuring people with disabilities have real choices for where they want to live. National ADAPT demands that HUD:

Expand affordable, accessible, integrated housing development and rent subsidy programs targeting low- and moderate-income people with disabilities, especially people who receive HCBS services.

Expand access to accessible home modifications programs to enable people to leave or avoid institutional settings thus saving millions of health care dollars.

Ensure that 811 Project Rental Assistance (PRA) funding is reserved for those transitioning out of congregate living settings to independent living.

Release the 2022-2023 811 PRA funding for people with disabilities. 

SUPPORT visitability; it means freedom for all and the ability to visit and enter ALL homes with a basic standard of accessibility.

“Those of us working at Centers for Independent Living are not able to truly help people get out of institutions if there is no proper access to accessible housing. Access isn’t only about a building having an elevator … it’s about affordability, ease of access to home modifications, and a housing system that allows disabled individuals to access these services without bureaucracy,” says Misty, an ADAPT activist. 

Without these priorities, people with disabilities will not have sufficient resources to leave institutions and/or live independently in the community. 

ADAPT activists led by Rhoda Gibson negotiate with HUD officials on the plaza in front of HUD HQ
HUD must face ADAPT in the plaza in front of their HQ. Rhoda Gibson presents demands on the site of the DUH City protests. photo: Cathy Cranston

ADAPT in ACTION!

National ADAPT folks are visiting the Senate today to call for more community attendants, better pay for attendants and accessible, affordable, integrated housing. The circled an intersection by the Russell and Dirksen Senate Office Buildings. Police are giving arrest warnings. If you want to watch the action you can go to the ADAPT of Texas Facebook page and people are often posting the action via live stream. Nicky was making some excellent commentary recently, and Danny before her. Go ADAPT warriors, go!

handcuffs to symbolize arrests

Senate Abandons Mothers on Mother’s Day

Who:  National ADAPT

What:  Mother’s Day Recognition of Community Attendants and HCBS recipients 

When: Sunday, May 8, 2022

Where: Spirit of Justice Park starting at 2PM 

For More information: 

Nina Bakoyiannis   646-709-2510   ninabakoyiannis@gmail.com Cathy Cranston       512-650-6543   flacacata@aol.comwww.nationaladapt.org

Washington, D.C.  National ADAPT will hold a rally south of the US Capitol to celebrate mothers that are Community Attendants and mothers with disabilities.  

Mother’s Day is a day to honor and show appreciation to our mothers. The Senate has abandoned our mothers who are attendants to their child or family member, mothers with disabilities who receive attendant services, moms assisting moms, and all mothers who are attendants receiving the inadequate wages that make it difficult for them to support themselves and their families.  This is how Congressional leadership “honors thy mother”.

National ADAPT and numerous attendant and disability rights advocacy groups have worked furiously to advocate for the $15 base wage, for funding for HCBS and affordable accessible integrated housing. The Congressional leadership has received hours of personal testimony, hearings, voluminous fliers, petitions, reports and countless Congressional visits, all coming together to stress the urgency of the necessary funding for HCBS and housing for people with disabilities and the community attendants that assist them.  Thus far, the Senate has refused to make these issues a priority.  “Such a lack of support by the Senate on the importance of the jobs we do,” said Carrie Warner, 30-year attendant in the community “such disrespect.” The Senate must make these issues a priority. Our lives depend on it.

It’s an Unhappy Mother’s Day for Community Attendants that do not get benefits; days off, not even on the day we “celebrate” them.

The Senate has also abandoned our mothers who are stuck in nursing homes, and who do not want to be in nursing homes but rather their own homes but cannot get the services they need to support them there. The bias toward institutionalization remains in Medicaid, despite decades of calls for change. States must provide institutional (including nursing homes) services while community services remain optional. With the growing shortage of attendants due to low wages and no benefits, this bias will grow even stronger. And the attendants who remain faithful to this noble profession despite the lack of pay and benefits grow older and needing supports themselves.

ADAPT Hosts Vaccine Round 4

With the help of Austin Public Health, APH, ADAPT held another round of COVID boosters and vaccines at our office the week of April 18th! APH, who have most helpful in ensuring people with disabilities and community attendants have access to vaccines and boosters, generously came out and jabbed us all. (Amerigroup and VaxAustin helped the time before as well.) Together we have made multiple vaccines and boosters available to hundreds of Austin folks with disabilities and community attendants, and this time APH gave away $100 gift certificates to boot! Below are some shots of us getting shots.

Disability Issues in May 7 Election

This election has one state disability issue, namely a constitutional amendment to increase the property tax exemption for people with disabilities and older Texans. To see the details visit the League of Women Voters Vote 411 They share pros and cons to each issue on the ballot.

Austin also has a proposition officially decriminalizing possession of small amounts of marijuana which many people with disabilities use to help with pain, seizures, spasms and other side effects of their disabilities. This same proposition oddly also addresses ending no knock warrants, which could effect people with psychiatric disabilities, among others.

Early voting has already started and ends Tuesday May 3rd. Election day is May 7. Don’t let voter suppression stop you from using your right to vote. If your vote doesn’t matter why are they trying to limit you using it? Rev Up Texas is fighting for your voting rights in the court room, you need to fight in the voting booth!

Disability Rights Texas Voting Rights Hotline 888-796-8683 will take your calls about any problems you may have. Hopefully you won’t need them.

5 ADAPTers Banned from Governor’s Reception Room. PACT & ADAPT vow to continue their call for action!

Having received no replies to our letter to Governor Abbot regarding attendant wages and the HHSC Commissioner’s total lack of a plan to deal with the problem of no attendants, PACT/ADAPT took action. We brought a copy of the letter over to the Governor’s Capitol Office. They did not know how to get ahold of him and bizarrely they were unable to call his scheduler. (That office really needs to upgrade it’s interoffice communications.) We said we’d wait and wait we did. Julie looked very official sitting at the Governor’s signing desk, maybe if she runs and wins the Governorship someone will do something about this crisis! But at the end of the day Capitol police were dispatched to escort us out. Those that still waited were given a paper banning them from the unreceptive Reception room for a year. What a blow! But of course we are still strong in our resolve to get this problem dealt with.

Inside the Reception room Cathy tries to call scheduler when staff refuse. Julie and Ron sit at Governor's signing desk and Keith sits and waits.  Nicky's legs visible behind Cathy.
PACT and ADAPT delivering our message in the Governor’s “Reception” Room.
Nancy Crowther sits in front of the Insurance Building stairs holding the GIANT letter to the Gov. She's wearing her tie-dye PACT shirt and a look of determination.
Nancy and a determined group of PACT/ADAPT folks delivered a copy of a letter to the Governor’s office in the Insurance Building by the Capitol. They made it extra big so it wouldn’t get lost like the other copies he has been sent.

Meanwhile Desert ADAPT & PACT brought the message to the local Health and Human Services Commission, HHSC, office, (the Governor doesn’t even have an office in El Paso) and had them fax our request for a meeting so the Governor’s people would know the request was not just from pointy headed Austin folks.

Of course we will continue to demand the Governor stop ignoring this issue. If you want to help call Cathy or Nancy 512-442-0252, and call or email the Governor’s scheduler 512-463-7210 invite@gov.texas.gov and tell them to meet with PACT& ADAPT!

ADAPT of Texas and Personal Attendant Coalition of Texas  Disability Rights & Community Attendants Roundtable

The UTA Disability Studies Minor, the Pre-Law Center, the Student Access & Resource Center, and the College of Liberal Arts’s Festival of Ideas are proud to present:

ADAPT of Texas and Personal Attendant Coalition of Texas 
Disability Rights & Community Attendants Roundtable

Please join us for this online conversation with national disability rights activists about community attendants’ experiences and the fight for better wages! 

Date: April 6, 12-1 pm via Teams: https://tinyurl.com/ADAPT-PACT-of-Texas (click here to go to the talk)

Presenters: Cathy Cranston, Nancy Crowther, Josue Rodriguez, and Francisca “Kika” Grajeda from Austin and El Paso ADAPT and Personal Attendant Coalition of Texas

Accessibility: ASL and AI CART will be available. Free and open to the public!

For more information about the roundtable or UTA’s Minor in Disability Studies, contact Dr. Sarah Rose at srose@uta.edu or visit http://disabilitystudies.uta.edu or http://facebook.com/UTADisabilityStudiesMinor. If you require a disability-related accommodation to fully participate in this event, please contact Mikila Salazar at mikila.salazar@uta.edu

Raul Zamarripa, another ADAPT Warrior is gone

Raul Zamarripa’s Virtual Memorial

February 17, 2022  3p.m. Mountain/ 2p.m. Pacific/  4p.m.  Central/ 5p.m. Eastern               

Desert ADAPT would like to invite you to join us as we celebrate the life and legacy of Raul Zamarripa.  As we let you all know previously, Raul passed away January 20 after contracting Covid-19.  We would like to for friends and family to come together and share many of the memories that Raul made with each of us.  He made an impact on the lives of many people and would love to honor that as we share stories of the many times we spent with him. 

Raul dedicated more than 24 years of his life to working with ADAPT to Free Our People. His dedication and passion towards fighting for the rights of people with disabilities will be greatly missed. His dedication to educate our community on issues that affect people with disabilities made him a very well-known advocate in our community and across the country. He was a fierce advocate in not only defending people with disabilities but our attendants as well. He leaves a huge void with Desert ADAPT but we are sure that he will join our other Desert ADAPT members who have gone before us and guide us from wherever they are now.  If you have any photos of Raul that you would like to share with us for his memorial, please upload them to this Google Drive folder.  Thank you.

Image 1: Raul in his power wheelchair in a tan Desert ADAPT shirt and hat with an orange flag on his chair.

Memorial virtual de Raúl Zamarripa

17 de febrero de 2022     3p.m. Montaña/ 2p.m. Pacífico/   4p.m. Centro/ 5p.m. Este

Desert ADAPT quisiera invitarlo a unirse a nosotros mientras celebramos la vida y el legado de Raúl Zamarripa. Como les informamos anteriormente, Raúl falleció el 20 de enero después de contraer Covid-19. Nos gustaría que amigos y familiares se reúnan y compartan muchos de los recuerdos que Raúl hizo con cada uno de nosotros. Hizo un impacto en la vida de muchas personas y  nos encantaría honrarlo mientras compartimos historias de los muchos momentos que pasamos con él.

Raúl dedicó más de 24 años de su vida a trabajar con ADAPT para Liberar a Nuestra Gente. Echaremos mucho de menos su dedicación y pasión por luchar por los derechos de las personas con discapacidad. Su dedicación para educar a nuestra comunidad sobre los problemas que afectan a las personas con discapacidades lo convirtió en un defensor muy conocido en nuestra comunidad y en todo el país. Fue un feroz defensor no solo de las personas con discapacidades sino también de nuestros asistentes personales. Deja un gran vacío con Desert ADAPT, pero estamos seguros de que se unirá a nuestros otros miembros de Desert ADAPT que nos han precedido y nos guiarán desde donde sea que estén ahora.  Si tiene fotos de Raúl que le gustaría compartir con nosotros para su memorial, súbalas a esta carpeta de Google Drive. Gracias.

Imagen 1: Raúl en su silla de ruedas eléctrica con una camiseta color canela Desert ADAPT y una gorra con una bandera naranja en su silla.

ADAPT activist Heiwa Salovitz is gone

picture of Heiwa
Heiwa. photo: Tom Olin

We are very sorry to tell you that our ADAPT warrior Heiwa has died. He was a passionate and committed person who loved his disability brothers and sisters fiercely. He personified the saying still waters run deep and we will miss him deeply. Heiwa means peace, in case he never told you.

Heiwa’s family had a memorial celebration of Heiwa’s life with ADAPT, on Thursday January 20th at 3:00pm central time.  DUE TO INCREASE IN COVID WE ARE MAKING THIS A ZOOM ONLY EVENT.